The PNH Research and Support Foundation
The PNH Research and Support Foundation
P.O. Box 10983
Rockville, MD 20849
United States
ph: 888-582-9993
info
NEWS + ANNOUNCEMENTS:
The 9th Annual Walk for PNH will be held this year on September 21st in Riverside Park NYC. More details and signups will be coming soon. We will keep you posted!
The 8th Annual Walk for PNH took place in New York City September 22, 2013. This is the largest event in the US dedicated to PNH disease fundraising. Learn more about how you can get involved with next year's event, even if you can't be in New York to join us..
See photos of this year's event here.
AA&MDS International Foundation's schedule of regional patient conferences for 2014 is now available. Register now at the AA&MDSIF Conference Website. Before you go, catch up on many of the presentations and archived webinars with information about PNH here: AA&MDSIF Online Learning Center
- NORD's regional patient meetings for 2013 is now over. Keep an eye out for updates when the 2014 meetings are posted. Visit the NORD PNH Regional Meetings page for more information and past presentations.
Thank Thank you Lon Larson, for this great photo of "Team Minnesota"!
OTHER PNH PATIENT EVENTS:
1. AA&MDS International Foundation Patient Conferences:
- Los Angeles, CA 4/5/14
- Philadelphia, PA 5/17/14
- Detroit, MI 7/26/14
- Louisville, KY 9/20/14
- New Orleans, LA 10/11/14
- Miami, FL 11/8/14
- Orlando, FL: February 7-8
- San Antonio: February 28-March 1
- Baltimore: March 14-15
- Providence: April 11-12
- Raleigh: May 9-10
- Seattle May 16-17
- Denver: June 20-21
- Chicago: September 12-13 View brochure
- Westchester: October 24-25 View brochure
- San Diego: November 14-15
NORD PNH Community Luncheons 2014:
- Los Angeles, CA - July 12
- New York, NY - July 19
- Baltimore, MD - September 6
- Chicago, IL - November 1
The PNH Research and Support Foundation
P.O. Box 10983
Rockville, MD 20849
United States
ph: 888-582-9993
info
