The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for Paroxysmal Nocturnal Hemoglobinuria (PNH disease) and to helping PNH patients in need with limited funding for disease-related expenses not covered by insurance.
NEWS + ANNOUNCEMENTS:
The 8th Annual Walk for PNH took place in New York City September 22, 2013. This is the largest event in the US dedicated to PNH disease fundraising. Learn more about how you can get involved with next year's event, even if you can't be in New York to join us..
AA&MDS International Foundation's schedule of regional patient conferences for 2014 is now available. Register now at the AA&MDSIF Conference Website. Before you go, catch up on many of the presentations and archived webinars with information about PNH here: AA&MDSIF Online Learning Center
NORD's regional patient meetings for 2013 is now over. Keep an eye out for updates when the 2014 meetings are posted. Visit the NORD PNH Regional Meetings page for more information and past presentations.